Caring for someone with emotional, intellectual, or physical challenges can be a roller coaster experience – alternating between exhilaration for small steps forward and exhaustion from the extra worry, work, and stress it entails.
It can also be a source of financial stress – especially if your loved one is older but not capable of making rational decisions about money and spending. It’s not unusual for someone with poor judgment to quickly exhaust his or her own financial resources – and wreak havoc on the family’s finances too.
A Special Needs Trust can help you assure the financial well-being of your loved one by:
Like other trusts designed to meet the financial needs of their beneficiaries, a Special Needs Trust is created according to the trust grantor’s wishes. The grantor also names a trustee and successor trustee, and funds the trust with appropriate assets – such as investments or real estate.
But what makes the Special Needs Trust different is the language in the trust document that directs the trustee to manage assets so they enhance the beneficiary’s quality of life without unnecessarily diminishing eligibility for federal Supplemental Security Income (SSI), Medicaid and other public benefit programs.
These programs typically have restrictions on (1) the value of assets that can be held by the beneficiary, and (2) the amount and way third parties may spend money on behalf of the beneficiary. For instance, SSI requires the beneficiary pay for his or her own food and housing from the SSI funds received. If a third party supplies these needs, the public benefits may be reduced.
In the past, many Special Needs Trusts were created with a Supplemental Distribution Standard. As a result, the language in the trust document specified that the trustee must not spend trust assets on anything that would diminish the beneficiary’s eligibility for his or her public benefits, explains Stephen Ink, Vice President & Trust Officer of Boston Private. “As a result, the trustee was prohibited from supplementing the SSI food and housing allowance with additional money from the trust,” he says.
Most trust attorneys and administrators consider that language much too restrictive for today’s world, where the housing and food allowance for public programs (between $735 and $900/month for SSI) is usually far from adequate. When working with prospective clients and their trust and estate counsel, Ink explains, “We almost always suggest to the client and counsel that they consider using the Discretionary Standard instead because it gives the trustee the discretion to distribute trust assets for the beneficiary’s well-being and comfort – even if that means making payments that will result in a 1/3 reduction of the Federal benefits.” As long as the payments are in the beneficiary’s best interest, this discretionary approach gives the trustee far more flexibility to meet the needs of the beneficiary.
The Trustee can pay for just about anything for or on behalf of the beneficiary as long as the payments are made in a manner that does not violate the public benefit rules. Some of these rules are logical inferences and some are not.
It’s also important to remember that eligibility for any state benefits varies widely from state to state. So it’s best to check with your trust attorney or advisor about the rules that might apply to your situation. In California, for example, the state supplements the Federal portion of SSI with a $160.72 monthly payment to the beneficiary. Not all states have this supplement.
Clearly, the trustee for a Special Needs Trust must stay informed and up to date about what the trust can and can’t pay for without affecting the beneficiary’s eligibility for government program payments. But there are other equally challenging aspects to managing these trusts, particularly when it comes to interacting with beneficiaries and other family members.
In fact, the most difficult part of administering a Special Needs Trust may not be the technical issues, but accommodating the personality and temperament of the beneficiary. That could mean protecting beneficiaries from financial predators who can take advantage of their diminished capacity -- or protecting them from themselves and their own poor judgment.
Boston Private has considerable experience working with beneficiaries who have a limited capacity to manage their own finances and often don’t grasp the financial complexities of their situation. Because they have very little concept of the value of money and how the money needs to be used for their long-term care and well-being, this can lead to their having unrealistic expectations, says Ink.
“For example, we’ve seen instances where a beneficiary vacillates between demanding full control of the money left in trust and threatening to sue a former trustee for allowing him or her to completely spend down all the assets in a prior trust.”
In situations such as the one referenced above, a corporate trustee would be the best solution, Ink says, because, a corporate trustee, like Boston Private, can be objective and say ‘no’ when appropriate. A corporate trustee can also diffuse tension among family members. “For example, when the beneficiary starts hating another family member who is the trustee, because the trustee won’t give the beneficiary everything he or she wants, that’s where we can step in. We can be the ‘bad guy’ outside of the family circle. The beneficiary can get mad at us and the family dynamic is not damaged by the interactions.”
The fact that a corporate trustee can provide this objectivity, and bring expertise and continuity to the challenging task of managing the financial needs of a family member with special needs, can be a big relief to concerned parents who worry about how their child will be protected and provided for in the future.
“We can provide assurances to parents that, as the trustee for their Special Needs Trust, we have a responsibility to serve the best interests of the trust beneficiary. That means we’re going to be there watching out for their family member. We’re going to make sure he or she has the financial resources to live a decent life in a safe place. In short, we’re going to be there for your loved one.”
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